From sailing the world to living in one room in an aged care facility – Ketra’s life undergoes a dramatic change when she becomes disabled by severe M.E. (Myalgic Encephalomyelitis, commonly known as Chronic Fatigue Syndrome).
Ketra tells her story and shares what helps (heart rate based pacing and lots of rest) and what harms her in this article in the Sydney Morning Herald. She explains why she thinks the ME/CFS guidelines in Australia need changing in this Courier mail article – which also covers break through research at the National Centre of Neuroimmunology and Emerging Disease (NCNED) on the Gold Coast, Australia.
And then there is After Unrest.
After Unrest is a short documentary Ketra has made from her bed in aged care, it not only tells her story and but also includes talks by the health care professionals that have helped Ketra with her disability. It touches on current research by the National Centre of Neuroimmunology and Emerging Diseases (NCNED) and provides a toolbox of useful information for patients, their families, carers and health practitioners alike.
There is a Low sensory version, without music for ME/CFS patients suffering from noise sensitivity.
Contents:
Brochures are available for printing, emailing and sharing.
Resources:
Resources are available for learning more about the topics covered in this video.
Posted: 2018-01-27
